King-Dowling S, Psihogios AM, Hill-Kayser C, Szalda D, O’Hagan B, Darabos K, Daniel LC, Barakat LP, Fleisher L, Maurer LA, Velázquez-Martin B, Jacobs LA, Hobbie W, Ginsberg JP, Vachani CC, Metz JM, Schwartz LA. Acceptability and feasibility of survivorship care plans and accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer. Pediatr Blood Cancer. 2021 Mar;68(3):e28884. doi: 10.1002/pbc.28884. PMID: 33416214
The transition between adolescence and adulthood can be a bumpy ride. Add overcoming cancer to that journey and self-care can get swept up among the many developmental landmarks. A study has been underway where researchers aim to reach these young adults through a mobile app, delivering a survivorship plan and management of their post-cancer care.
“Ultimately, this study could inform a more tailored approach to intervention to keep AYA (Adolescent & Young Adult) survivors at risk for poor self-management and disengagement more motivated and engaged,” Dr. Schwartz said. “They survived cancer. We want to protect that investment and have them live long healthy adult lives.” Lisa Schwartz, PhD is Associate Professor of Pediatrics at the University of Pennsylvania and a psychologist in the Division of Oncology and the Childhood Cancer Survivorship Program at CHOP. Integrating Self-Management Education with Cancer Survivorship Care was funded by the Centers for Disease Prevention and Control (CDC) as a Special Interest Project (SIP) in the UPenn Prevention Research Center from 2015-2018. The SIPs receive funding through competitive calls for proposals to address topics of interest or gaps in scientific evidence.
Pediatric Blood & Cancer published the study’s findings in their article “Acceptability and feasibility of survivorship care plans and an accompanying mobile health intervention for adolescent and young adult survivors of childhood cancer.” It was concluded that the mobile intervention was accessible and helpful to users, but it needs more refinement and research.